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3.6 Overall Rating

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Most voted positive review

32 People found this comment helpful

Used mercaptopurine for 3 years. Best 3 years of the last awful 27 years I have had. However, I am now going through chemo for non hodgekins lymphoma, a side effect of mercaptopurine. Wish I had not taken the drug now.

Most voted negative review

3 People found this comment helpful

I am on this drug for a flareup that occurred this summer. However I will be requesting that my doctor take me off it, as the side effects are too serious for me to be comfortable with. We would also like to have children in the next few years. I would encourage anyone with IBD issues to research and seriously consider the Specific Carbohydrate Diet. I started it a few months ago and feel grea...

Shared reviews and ratings

dammdon | 65-74 | Male | On medication for 6 months to less than 1 year | Patient
10/30/2010
Condition: Inflammatory Bowel Disease
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
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tired all the time | 45-54 | Female | On medication for 1 to less than 2 years | Patient
8/26/2010
Condition: Inflammatory Bowel Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

Ihave ulcerative colitis and this med could not stop the flare up. My Dr. increased the dosage and I developed sores and bleeding in my mouth, along with horrible breath. My liver enzymes went up and the dosage was lowered. Still on the Single Carbohydrate Diet by Elaine Gotshall. I am down to 111.5 pounds. If this doesn't work then I may have to have my rectum removed and use a bag. I really hope the flare up doesn't return. I am exhausted and work a 45 hr/ week job with a 7 years old. When will this end/Read More Read Less

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Anonymous | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
5/28/2010
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was initially afraid to take it, however, it has made me feel like my normal healthy self again. I have been on it for 8 months, and I have not seen the side affects that I heard about, thank God!! My goal is to continue my meds and the Single Carbohydrate Diet by Elaine Gottschall. I am a nervous person and have begun relaxation techniques and maybe I can then be weaned off the meds and stay on the diet for another year and then gradually try introducing grains again. The diet is not easy to stay on.Read More Read Less

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Sane | 25-34 | Female | On medication for 1 to 6 months | Patient
5/16/2010
Condition: Inflammatory Bowel Disease
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with ulcerative colitis 3 years ago ever since than I was put on prednisone (steroid) to keep my severe flare ups under control. I had 3 difrent gi doctors to take me off the steroids because I couldn't find the right medication To work for me other than steroid. So finally I was put on 6 mp 6 months ago100 mg per day. and I have been doing well on it with no side effect or flare ups.So my doctor recommend I stay taking it for the rest of my life. But my Maine concern is what should I expect from this medication if I stay on it for the rest if my life? Anyone has the same recommendation ? Read More Read Less

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katkat | 45-54 | Female | On medication for 5 to less than 10 years | Patient
5/12/2010
Condition: Inflammatory Bowel Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
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parent | 45-54 | Female | On medication for 2 to less than 5 years | Caregiver
4/4/2010
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Responding to the previous reviewer--my daughter took both 6MP and warfarin for about 8 months. She had a clot and was on warfarin for a few months. Her IBD worsened and couldn't be controlled with any other drugs we tried. Once on 6MP she got much better. She never has any bad interactions between the 6MP and the warfarin. Her doctors monitored her warfarin carefully--she went for weekly bloodwork the entire time she was on warfarin (almost a year). I hope you're doing better!

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NOTSURE WHAT TO DO | 25-34 | Female | On medication for less than 1 month | Patient
3/23/2010
Condition: Inflammatory Bowel Disease
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I just started this drug and am very concerned with the drug interactions- my doctor and pharm, both said I can mix it with warfarin, but im not so sure, after 2 days of use I now have a blood clot in my leg, not sure what to think- any one else mixing WITH BLOOD THINNERS??

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Anonymous | 35-44 | On medication for 1 to 6 months | Patient
2/18/2010
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

ulcerative colitis

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Anonymous | 25-34 | Female | On medication for less than 1 month | Patient
2/17/2010
Condition: Inflammatory Bowel Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

After 2 weeks of taking this medicine, I became very nauseated all the time. That is the only side effect I've had, but it's enough to make me stop taking it.

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Anonymous | 45-54 | Female | On medication for 5 to less than 10 years | Patient
2/10/2010
Condition: Inflammatory Bowel Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have been taking this medication since being diagnosed with Crohns 5 years ago. Have had very little to no side effects, but recently have had an increase in upper respiratory infections. Wondering if any others are suffering increase illness?

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CBE | 35-44 | Male | On medication for 5 to less than 10 years | Patient
1/18/2010
Condition: Inflammatory Bowel Disease
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have had Crohnes for about 10 years. When this drug was only available as a name brand (purenthol,) it was much better. The generics are inconsistent in the relief they give. Even though they are supposed to be the same. I am tempted to pay the difference and forget about the insurance.

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Anonymous | 25-34 | Female | On medication for 5 to less than 10 years | Patient
11/4/2009
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have been taking this drug (50 mg) for 6 years right after a serious flare that landed me in. I have never had any serious side effects. I also take Asacol 3 times a day(started with 4 tablets per dose, and now down to three). I got pregnant and continued both treatments. I was monitored closely and delivered a healthy baby via c-section. No breast feeding, but thankful for the healthy baby. I did not experience a flare after the pregnancy. This drug has kept me from being dependent on prednisone.Read More Read Less

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lrscorp | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
10/5/2009
Condition: Inflammatory Bowel Disease
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Ive been using this drug for 10 monthes with little improvement and alot of side effects.I started at 50mg ,then was upped to 75mg.I cant go up any futher than that cuz my blood counts and liver enzymes go crazy.Ive expercienced nausea,hair loss,sinus infections,itchy skin,fever,chills,body aches and inflamation,its not showing results after ten monthes so we are gonna try Humira

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jj | 35-44 | Male | On medication for 6 months to less than 1 year | Patient
9/27/2009
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have Crohn's. Taken this med on/off for over 1 year. No side effects noticed. Some lower back issues but didn't believe related. Female reviews indicate hair loss, not for me. Try it. Better yet, heathly diet (reduce lettuce, increase tomato), reduce stress, and hope your dr. is good (I had issues with dr ignoring and making illness worse).

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Anonymous | 45-54 | Male | On medication for 6 months to less than 1 year | Patient
9/22/2009
Condition: Inflammatory Bowel Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Have had UC for 30 years. A few years ago 5-ASA failed to resolve my flares. Tried Prednisone twice. Worked on UC, but side effect of hyperglycemia made continued use impossible. Have been on 6MP for 9 months. Works fine on UC. Found I had to change my diet somewhat as the 6MP seems to have made me less tolerant of some foods, but I can live with that. Worst side effect, if it is one, is middle back pain from area of just above left kidney to slightly higher on right. Came on after 3 weeks of 6MP use. Despite various tests and imaging no one can diagnose anything else wrong, but the literature on 6MP doesn't have show that kind of pain associated with it. Will risk going off for 6 months soon to see if that resolves the back pain. Hope your experience is better than mine.Read More Read Less

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/6/2009
Condition: Inflammatory Bowel Disease
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

This medication worked well for me until blood tests indicated that it was effecting my liver. I also experienced skin rashes/inflamation and wonder if anyone else has had this experience?

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Anonymous | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
9/4/2009
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

Taking 50mg daily for autoimmune hepatitis. Started out along with 40mg prednisone but have been off prednisone since May. Mild elevation of liver enzymes but so far no decrease in white cell count. Sometimes fatigued but it usually doesn't last longer than a day or two at a time. Occasional hot flashes. Slightly more bruising then usual. No hair loss. Some joint stiffness/weakness but that may be associated with unknown connective tissue disease.

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Aaliyah | 3-6 | Female | On medication for 1 to less than 2 years | Caregiver
8/27/2009
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

My 5 year old granddaughter has been on this medication for aproximately 18 months, in conjunction with Sulfasalazine and has had very welcome results with little or no side effects.

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cacherokeegirl | 35-44 | Female | On medication for 1 to 6 months | Patient
8/11/2009
Condition: Inflammatory Bowel Disease
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I've only been on this medication for 6 weeks. I've noticed a great improvement. I only have one problem, hair loss. Anyone have any ideas as to how I can reverse this and still take the med?

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katina 247 | 25-34 | Female | On medication for 2 to less than 5 years | Patient
7/18/2009
Condition: Inflammatory Bowel Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I had been taking asocal but i had to take so many every 4 hours! Now i take 1 1/2 a day. Its better for me cause one dose im done for the day, with having children you are contuniously doing things, and having to remember things. This i dont have to remember if i took it or not!

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