User Reviews for tamoxifen oral

I was diagnosed with stage 0 DCIS in July of 2013. After participating in a drug study I had a lumpectomy in November of 2013. I then started 33 radiation treatments. After which I started Tamoxifen. I lasted 35 days of taking 20 mg each day. I have severe hot flashes, nausea, bone pain and hardly any sleep. I spoke with the dr and he wanted me to stay on it. I had to dig deep within me but I stopped taking it. I cannot function. Think long and hard about this medicine.

I been on this med since january 2014 I had hot flashes which slowed down alot.I have muscle aches and then my lining was thick so 3 weeks ago i had a dnc now i got my period heavy again.I am going to gyno today to talk to her i want off of this i havent felt the same since taken it.I was stage 1 my limpnodes were removed all good.I really thought u dont get your period on this meds.I am 54 years old had breast cancer 2013.so far so good.And just started getting my period again it horriable.That it sooo heavy.....oh well thats my storyRead More Read Less

I am 37 and have been taking T for 3 1/2 years. My dr told me he is going to have me take T for longer than the standard 5 years. All of my scans since surgery and treatments have been clear. I have heard a lot of bad reviews on this medication but I have not had bad side effects. Very rarely, I will have mild hot flashes. I have also had some weigh gain,but not enough to make me stop taking the meds. I am premenopausal so I don't know if that makes a difference.

I took Tamoxifen for 5.5 yrs for treatment of breast cancer after a mastectomy. The only side-effect I noticed was that my post-menopausal hot flashes were a little more frequent. No big deal. Don't be scared off by all the negative posts; I think generally only people with bad experiences post.

had several fevers over 101 and had excruciating bone pain all over making it difficult to sleep or get up from sofa.

I stopped Tamoxifen in Dec after taking for 5yrs (diagnosed with LCIS with ALH). I would take Tamoxifen again even though I had to deal with some of the side effects mentioned in other posts. I had weight gain (now losing), leg and even toe cramps have almost stopped, fuzzy brain seems to be better (learned to take a lot of notes), still have occasional night sweats but they could be age related, and vaginal dryness has improved. I had some joint pain the first couple of years but it is gone. Every time I heard "no changes" after my mammogram, including one 6months after stopping Tamoxifen, made the five years of side effects worthwhile.Read More Read Less

Blurred vision and dimensia

I am a 57 year old male who has been taking T for almost 5 yrs. my oncologists (2) now want me to take it for another 5 yrs. I just can't do it! Weight gain (30 lbs), depression, loss of sex drive, achy joints, hot flashes, fatigue-should I go on? Have decided to stop the medication and see what happens! Have read a lot of reviews from women but none from men.

I have recently had a nodule removed and it was benign, however, I've been diagnosed with ductal hyperplasia. Surgeon sent me to an oncologist who wants me to take Tamoxifen. I'm scared to death of the side effects. I can probably deal with hot flashes, but not mood swings, possible blood clots and weight gain (I'm already 20 lbs overweight, trying to lose with diet and exercise), anyway..I still have not started it and will be seeing my oncologist again next week, I'm sure she won't be happy with me, but as I said I'M SCARED TO DEATH TO START due to some of side effects I've read about. I'm sure I will have to eventually give in, but would prefer to have mammo more frequetly to see what happens in area around surgery.Read More Read Less

I have been on med since Nov. 2013. I have gained weight & a ton of inches around my middle. I sometimes feel lethargic & my mood swings are terrible. I want to quit taking it really bad. My vision blurs on occasion & headaches occur out of the blue. I have never been one to have headaches. Just not sure what to do. Have explained to my doc but she still wants me to keep taking it. Getting very discouraged......

my face & hands have a rash & swelling after being in the sun. Has anyone else had this side effect from Tamoxifen? I just started taking it. My dr said not a side effect of drug.

I hate this medication. The mood swings and hot flashes are terrible. The only way I can tolerate it is to take something for anxiety. I am considering stopping it.

I AM 64 I HAVE BEEN ON THE DRUG FOR 2 1/2 YEARS NORMAL I WOULD NOT TAKEN THIS DRUG BUT THE OTHER DRUGS CONTAIN STERIOD, SIDE EFFECTS HOT FLASHES NIGHT SWEATS PAIN IN THE LEGS I HAVE NOT THOSE SINCE MY 50'S I HAVE BEEN OFF THE DRUG FOR 2 MOS BECAUSE I HAD RETINA SURGERY HAD TO BE FACE DOWN FOR ONE MONTH I DIDNT WANT TO DEAL WITH SIDE EFFECTS GUESS WHAT WENT AWAY THE DRUG CAN FORM CRYSTALS IN THE RETINA SO NOW I HAVE TO SEE MY RETINAL DOCTOR TWICE A YEAR NOW I HAVE TO MAKE A CHOICES EYES OR CANCER RIGHT NOW I AM VISUALLY IMPAIRED DUE TO RETIONA PROBLEMS IN BOTH EYESRead More Read Less

I was diagnosed with BC June 2013 and caught very early. Been taking Tamoxifen (T) since then and follow up mamo is clear so far. Gave Effective rating 4 stars since its early yet. I have minor issues, but I don't believe they are T related since I had them before taking it. Symptoms are hot flashes, achy bones/joints, trouble with sleeping at times. Think its just menopause and also believe its not enough vitamin D and calcium. Taking the Vit D and Cal does help but it takes time.

HELLO,I'M 42 YEARS OLD DIAGNOSED WITH BREAST CANCER,HAD BOTH BREAST'S REMOVED IN AUG/2013,HAD CHEMO AND FINISHED IN DEC/2013.STARTED TAMOXIFIN IN JAN/2014 AND I HAVE BEEN MISERABLE.MY JOINT'S HURT,I'M GAINING MORE WEIGHT WHICH MAKES ME EVEN MORE MISERABLE,I HAVE NO INTEREST IN SEX AND SO WORRIED ABOUT BLOOD CLOT'S FORMING.NOT SURE IF I MADE THE RIGHT CHOICE IN TAKING THIS MEDICATION.I AM STILL SMOKING AND BATTLE THIS EVERY TIME I LIGHT UP.I KNOW I SHOULDN'T BE SMOKING BUT JUST FEELING LIKE I HAVE NO MORE INNER POWER TO QUIT,I GUESS I JUST NEEDED SOMEONE TO TALK TO ABOUT MY FEELINGS AND PERHAPS THERE IS SOMEONE GOING THROUGH THE SAME ISSUES.I FEEL AT TIMES THAT I JUST WANT TO WAKE UP FROM THIS NIGHTMARE AND GO BACK TO MY OLD LIFE.Read More Read Less

Hello my name is Carrie. I am 33 years old. I started taking this med. Two years and two month's ago. what I would like to know is if there is anyone out there in my age range? I can say for me at my age it has been a world wind of emotions. I'm also a high risk in my family pool when it comes down to breast cancer. All comments are welcome to help me go thru the next 3 yrs.

During a mammogram in 2012 DCIS was found, at age 63. A lumpectomy on R. breast, followed by 6 wks. of radiation therapy. Stage O, Lymph nodes were clear. Tamoxifen 20mg. recommended for 5 yrs. I would get a hot flashes within the hour of taking the medication, and my cheeks become red. Last for a short time only. I noticed within the last month, unexpected pain on my front thigh, at times it shots down to the knee, and the front to the front of my calf. I definitely have mood swings, lost interest in sexual desire, and pray that this medication doesn't cause any permanent health issues. I have been very active, and still are, other then slowing down some. I will share my symptoms with my doctor on the next visit. My concern is, would tamoxifen cause permanent damage. I read some of the symptoms from others, who said they developed O.A., don't know if they had arthritis to begin with, if so, did it worsen? I hope to feel back to feeling good again once I finished my treatment. Read More Read Less

I have been taking Tamoxifen for about 6 months. I was on Evista for 2 years, but was having severe leg cramps. I also have type 2 diabetes. I have been having problems controlling my blood sugar levels. I think this is a side effect of taking the tamoxifen. Both my primary doctor and my oncologist do no seem concerned. I am still experiencing leg cramps but not as severe. I also have vaginal dryness and itching. I don't know if I want to continue taking this medication.

In April 2014, I will have been on Tamoxifen for 5 years. Many side effects. Mostly I have gained weight, 30 lbs., which makes me feel depressed. Also, libido is nonexistent and cataracts are beginning to form. Oncologist wants me to go another 5 yrs. Must decide if the side effects are worth it. Don't want to go through chemo and radiation again, either.