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3.6 Overall Rating

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Most voted positive review

15 People found this comment helpful

I have polymyositis. I started ivig about 5 years ago. In the begining I had treatments biweekly and currently I go every 3 weeks for 2 days. When I first started treatment I was barely able to walk, now I am much stronger. In the begining it have me huge headaches however now that the hospital changed from the powder form too liquid form the headaches are rare. Last year I thought ivig wasn'...

Most voted negative review

2 People found this comment helpful

received 800ml for 2 days every other week did this treatment for 1 year no noticable benefit developed high blood pressure from it

Shared reviews and ratings

alanc215 | 35-44 | Male | On medication for 5 to less than 10 years | Patient
10/18/2009
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I take at times taken this by IV weekly for Lambert Eaton Myasthenia Snydrome. It would give me my strength back for a few days. It worked well for me I took it weekly for 5 years.

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sns92 | 13-18 | Female | On medication for 1 to 6 months | Patient
9/2/2009
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I've had Myasthenia Gravis for about 4 months now. I started IVIG transfusions immediately the day I was daignosed with the disease. It has helped me tremendously with my muscle weakness. The only side effects I get are fatigue, loss of appitite, and nasuea.

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kayandchase | 45-54 | Female |
8/31/2009
Condition: Systemic Lupus Erythematosus
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I received this IGG IV while in the hospital for newly diagnosed auto immune lupus-like disorder. Was $10,000 per day for five days treatment....but....brought my labs from critical to normal in five days! Does make you nervous/tearful feeling or it did me....they gave me Xanax each day befor starting it on MD recommendation....was a miracle drug....

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halfwhit | 45-54 | Female | On medication for 5 to less than 10 years | Patient
7/28/2009
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have had dermatomyositis for about 6 years. I started IGIV about 6 months after being diagnosed, doing 4 half days a month. Changed it to 2 half days every two weeks to start. The first time was terrible. I had the first and worst migrane I had ever had. However, the side effects decreased to the point I haven't had migrane in years. I now get treatment once every 7 weeks. At first, I could not walk, pick my self up if i fell, swallow... horrible. Now I have virtually no symtoms whatsoever. My PA says I am stronger than she is. My advise... Take it, keep your head down and keep moving. It'll be work it. Read More Read Less

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Slr | 35-44 | Female | On medication for 2 to less than 5 years | Patient
7/15/2009
Condition: Hypogammaglobulinemia associated with Recurrent Bacterial Infections
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

After leaving the mayo clinic with a few diagnoses; lupus, hypogammaglobulinemia, and an "unidentified immune disorder", I began ivig treatments. I go every month and take 8 hour infusions. On Those days I feel awful along with 1 or 2 additional days. However, the rest of the month I feel....like a normal person. I'm not constantly sick anymore. When I do get sick, the Medicine actually works.....I don't end up in the hospital. I've been doing this for almost 3 years. I am thankful for all the donors that make each transfussion possile (since thousands of donors are are necessary for a single treatment.) Read More Read Less

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bevijea | 25-34 | Female | On medication for less than 1 month | Patient
3/16/2009
Condition: Guillain-Barre Syndrome
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I was given this drug for Guillain barre syndrome. After 7 treatments it has helped me so much. I wasn't able to walk without assistance, bath myself and it was hard for me to use my hands, now I am walking on my own and can do the simple things I wasn't able to do. I had no side effects and the only negative thing was I had to be admitted to the hospital since they didnt give this treatment as an outpatient

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Anonymous | 45-54 | Male | On medication for 1 to less than 2 years | Patient
11/29/2008
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 2.7
Effectiveness
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Satisfaction

received 800ml for 2 days every other week did this treatment for 1 year no noticable benefit developed high blood pressure from it

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freegal37 | 35-44 | Female | On medication for less than 1 month | Patient
10/12/2008
Condition: Common Variable Agammaglobulinemia
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

This was my first treatment. It has been a terrible experience. Horrible headache, rash, dizzyness, Lower & mid back pain. If this is what it is going to be like with each treatment I am not sure this is what i want to do on a monthly basis. For such an expensive treatment. I cant be missing 4 days a work after each treatment because of side affects.

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Anonymous | 35-44 | Female | On medication for less than 1 month | Patient
4/4/2008
Condition: Hypogammaglobulinemia associated with Recurrent Bacterial Infections
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

have taken this treatment in 6 month courses on three different occassions being able to go approx. 2 yrs between treatments

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SharonN | 55-64 | Female | On medication for 1 to less than 2 years | Patient
11/21/2007
Condition: Chronic Inflammatory Demyelinating Polyradiculoneuropathy
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have received this drug since 10/2006 for CIDP. I also was diagnosed with Type 2 Diabetes in Sept.2006. I received 5 days of IVIG in 10/2007. I failed to follow up and by 12/2007 was so weak I couldn't get out of bed or a chair without the help of my 84 year old mother. I also needed to use her walker in order to get around. I had 5 more treatments the last 2 days of Dec. 2006 and first few days of Jan. 2007. I improved significantly in mobility after that. I received 5 more treatments in Feb. and from March until now (Nov. 2007) receive 3 treatments each month.Read More Read Less

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[email protected] | 45-54 | Female | On medication for 1 to 6 months | Patient
10/12/2007
Condition: Severe Combined Immunodeficiency Disease
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I don't like all of the side effects, they are just as dangerous as the immune defienciency. The expense is enormous 5,ooo.oo for each infusion.

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